Co-Creating Compassion: Engaging the Alzheimer’s Community in Social Robotics for Caregiving

A robot for individuals grappling with Alzheimer’s disease that offers companionship, support, and aid in various caregiving tasks

Kimberly Mitchell
Assistant Professor
University of Tennessee-Knoxville

By 2025, the number of people aged 65 and older with Alzheimer’s + dementia is projected to reach 7.2 million — an 11% increase from those affected right now. By 2060, this number is projected to reach 13.8 million. This deeply affects our caregivers – In 2021, family members and friends provided more than 271 billion dollars of unpaid care to people living with Alzheimer’s and other dementias. While technology will never replace human touch and person-centered care–technology can enhance caregiving–especially with routine tasks like organizing appointments, and medication reminders. 

Mitchell Mitchell is a graphic designer with a background in gerontology who is co-leading a multi-year, multidisciplinary project aimed at developing a social robot for Alzheimer’s caregiving by harnessing the collective expertise of undergraduate and graduate students spanning diverse fields such as engineering, computer science, architecture, and graphic design. Together, they are collaborating with the local Alzheimer’s community to conceptualize and co-design a friendly robot. This innovative project aims to develop a socially interactive robot tailored to assist in easing the challenges of dementia caregiving.

Mitchell’s design expertise bridges the gap between technical functionalities and user experience. She ensures that the technology developed aligns with the needs and expectations of the Alzheimer’s community. Mitchell’s additional expertise in gerontology enables a deeper understanding of the needs, behaviors, and limitations of Alzheimer’s patients. This insight informs the design process, ensuring that the robot’s interface, visuals, and interactions are tailored to the specific needs of the end-users. 

Originating from a collaborative endeavor between faculty members in biomedical engineering and design, Mitchell assumed the role of project oversight. Her responsibilities encompassed the development and leadership of two Institutional Review Board (IRB) studies. These studies incorporate user testing methodologies and participatory focus groups to glean invaluable insights directly from the Alzheimer’s community.

By leveraging this diverse pool of talent and engaging directly with the end-users, Mitchell and her team aspire to create a socially adept robot. This robot aims to offer companionship, support, and aid in various caregiving tasks for individuals grappling with Alzheimer’s disease. The inclusive and collaborative nature of this project underscores its commitment to addressing the real needs of those affected by dementia, empowering them through innovative technological solutions.

By involving the local Alzheimer’s community in all aspects of the project, the team ensures that the robot’s development is grounded in real-world scenarios and feedback. This participatory approach fosters empathy-driven design, making the technology more relevant and impactful for end-users.

The project’s outcomes, such as award-winning publications, peer-reviewed funding, undergraduate research awards, and acceptance in the local Alzheimer community showcase the effectiveness of integrating a gerontology-informed graphic design approach within a multidisciplinary context. 

The unique perspective Mitchell brings as a graphic designer with a gerontology background enriches the project by emphasizing user-centered design, ensuring that the social robot developed for Alzheimer’s caregiving is not just technically proficient but also deeply empathetic and effective in meeting the complex needs of the patients and caregivers.

Direct Outcomes

Mitchell, her students, and her research partner, Dr. Xiaopeng Zhao, have co-authored three peer-reviewed international publications – two of which she was the lead author on, and both received awards for “best paper” and “honorary mention.” Additionally, the project has had exposure nationally and internationally, where she has presented different facets of the project at 4 national and 2 international conferences. Finally, one of her undergraduate graphic design student researchers received first place at the University of Tennessee’s “Exhibition of Undergraduate Research and Creative Achievement” (EuRECA) competition.

Publications
  1. Mitchell Mitchell, Robert Bray, Ella Hosse, Matt Rightsell, Luke Macdougall, Xiaopeng Zhao, “Co-designing a friendly robot to ease dementia,” a peer-reviewed paper accepted in Advances in the Human Side of Service Engineering book, July 2023, Best Paper Award (Honorary Mention), 2023
  2. Mitchell Mitchell, Luke Macdougall, John Hooten,  Robert Bray, Xiaopeng Zhao, “Designing a multi-disciplinary class to create a social robot for Alzheimer’s,” a peer-reviewed paper accepted in Advances in the Human Side of Service Engineering book, pp 33-40, July 2022, *Best Paper Award (2nd place) https://doi.org/10.54941/ahfe1002538
  3. Robert Bray., Luke MacDougall, Cody Blankenship, Mitchell Mitchell, Fei Yuan., Silvia Cerel-Suhl, & Xiaopeng Zhao, (2023, February). “Development and assessment of a friendly robot to ease dementia,” a peer-reviewed paper in Computer Science vol 13818. Springer, Cham (pp. 381-391). https://doi.org/10.1007/978-3-031-24670-8_34
Presentations
  1. “Using design to empower students to be a force of change: designing interdisciplinary experiences to address the needs of ad and dementia patients,” Gerontological Society of America, Indianapolis, Indiana, November 2022, A presentation showing how an interdisciplinary class was created to solve problems related to Alzheimer’s Disease and related dementias.
  2. Designing a multi-disciplinary class to create a social robot for Alzheimer’s,” 13th International Conference on Applied Human Factors and Ergonomics, virtual, July 2022, Presented the collaborative role and responsibilities of undergraduate and graduate students in the design of a social robot.
  3. “Using design to empower students to be a force of change,” Emerging Technologies in Aging & Dementia Conference, Knoxville, TN, June 2022, A presentation showing how to use human-centered design to solve real-world problems related to dementia care.
  4. “Design and validation of a social robot for Alzheimer’s disease,” American Society on Aging, April 2022, Presented initial data on the design and user testing of our prototype robot.
  5. “Designing socially assistive robots for people with Alzheimer’s and related dementia,” Gerontological Society of America 2021 Scientific Meeting, virtual, November 2021, Presented a research paper explaining the demand for additional help in caring for Alzheimer’s and dementia patients.
  6. “Addressing dementia disparities using socially assistive robots,” 2nd Latinos & Alzheimer’s Symposium, virtual, May 2021, Presented collaborative research with the Department of Mechanical, Aerospace, and Biomedical Engineering and the School of Design in the creation of a low-cost social robot.
Awards    
  • Human Side of Service Engineering paper, Honorary mention, 2023 
  • Eureca, 1st place undergraduate researcher in division, 2023 
  • Human Side of Service Engineering paper, 2nd place paper, 2022 
  • Undergraduate Research Funding award, $3,000 (2023), $1,500 (2022)
  • 2023 Alma and Hal Research Award, $10,000

This project was the 2023 Design Incubation Educators Awards runner-up recipient in the category of Scholarship: Publication.

Kimberly Mitchell is an Assistant Professor of Graphic Design at the University of Tennessee Knoxville. She holds her BFA and MFA in Graphic Design and a certificate in Gerontology. She is an award-winning designer and researcher who focuses on understanding and improving experiences that support the health and well-being of underserved populations, particularly among older adults. Her multidisciplinary research focuses on the social impact of design, and how by creating awareness, a designer can improve a community’s quality of life. Her work bridges design and gerontology. Her most recent project involves co-designing with the community an AI robot interface as a conversational partner and monitor for individuals with Alzheimer’s Disease and related dementias.

Designing for the Visually Impaired

Affordable accessibility design.

Min Choi
Adjunct Professor
San Diego State University
San Diego City College

Low vision is a part of the natural aging process, and we all have the potential to face it at some point in our lives. Though there are many exceptional high-tech devices to help people with visually impaired and blind, there has not been enough attention given to applying accessible design when creating affordable everyday products to benefit them.  The statistic shows that in the U.S., only around 30%1 of people with a visual disabilities are fully employed, and cannot afford to buy assistive technologies that may be awesome for them, but costs hundreds or even thousands of dollars.

To address this issue, I am researching how people with low vision could experience high-contrast colors and basic shapes with tactility at a reasonable price. In-person, human-centered design approach guided me to build a deep empathy towards my audience and explore design process and solutions that would help celebrate their disabilities.

A home product line incorporates high-color contrasts and tactility using universal symbols for people with visual impairment. It is an experiment to help them to be independent and empower their everyday activities those of us with good vision often take for granted—including eating, getting ready for bed, and getting dressed in style.

At its heart, we must identity what the audiences’ needs are—and the only way to create design solutions is to connect with those who will benefit the most. Design with purpose and function is beneficial for everyone—especially those with disabilities.

This research was presented at the Design Incubation Colloquium 6.2: CAA 2020 Conference Chicago on February 14, 2020.

The Value of Impermanence in Design

Designers should consider the balance between documentation and impermanence and ask what is permanent versus what is ephemeral?

Christopher Previte
Associate Professor
Franklin Pierce University

Many spaces on the web (social media, photo sharing, genealogy sites, etc.) ask us to document so much of our lives. From photographic evidence of what we eat and who we are with to digital dog-ears of our favorite music, political leanings, and familial connections, we willingly and slavishly create collections in an effort to connect with each other and prove that we matter. There is an implied permanence to these collections and they are used as currency in maintaining social hierarchy and relationships. This reliance on documentation creates an imbalance and denies the value of impermanence.

Buddhists, for example, believe that impermanence brings us hope and embodies the spirit of freedom and shatters the concept of predestination. Science teaches us that old cells in our bodies die and yield place continuously to the new ones that are forming. Technically speaking, no individual is ever composed of the same amount of energy. Impermanence and change are thus the undeniable and essential truths of our existence.

Therefore, while online culture and mobile connectivity continues to grow, it must also evolve. 

Designers should consider the balance between documentation and impermanence and ask what is permanent versus what is ephemeral? Snapchat, for example, sought to convey what made face to face conversation special. The notions of impressions and deletion by default were baked into its user experience. At its best, user experience design focuses on the intangible and speaks to concepts such as atmosphere, personality, familiarity, and comfort—remembering that “users” are, in fact, humans. Given that, should not more research and discussion be dedicated to finding that balance and uncovering the value of impermanence?

Here we will begin that discussion and ways we can incorporate it into our design practice.

This research was presented at the Design Incubation Colloquium 5.3: Merrimack College on March 30, 2019.

Exploring Narrative Inquiry as a Design Research Method

Anne Berry
Assistant Professor
Cleveland State University

Whether working as industry professionals or engaged in academic research, designers are trained to embrace complex, unframed problems and prioritize the needs of end-users. Processes derived from design practice, such as design thinking and human-centered design (HCD), can subsequently be useful in providing frameworks and strategies to address broad, undefined challenges. There are limits to the depth and breadth of information that can be gathered about the complexities of human nature when filtered through these approaches, however. Designing products for people versus designing to affect change within complex political, social, and cultural systems—or what scholars Cinnamon Janzer and Lauren Weinstein refer to as “object-centered” and “situation-centered” practices—run counter to one another. Questions subsequently remain as to how designers should bridge gaps between the design problems identified and the research techniques employed when working towards solutions.

In contrast to “object-centered” approaches inherent in design thinking and HCD, narrative inquiry is a qualitative method particularly suited to human complexity. Everyday lived experiences, their impact, and the social and cultural contexts in which the experiences take place are examined through storytelling. With an emphasis on building knowledge, versus setting out to achieve specific outcomes, narrative inquiry has the potential to help designers develop deeper understanding of the people and systems they design for. This talk, consequently, will address how narrative inquiry can be utilized as a research method for design research.

This research was presented at the Design Incubation Colloquium 5.2: CAA 2019 Conference New York on Thursday, February 14, 2019.

Worry Quest: Adventure Games for Fighting Anxiety

Matthew Bambach
MFA candidate, Graphic Design
Maryland Institute College of Art

Worry Quest is an app that helps fill gaps in mental health care experienced by young adults. It uses joy and technology to combat anxiety with simple, proven, psychotherapy techniques. The app lets youth envision themselves as a hero and their anxieties as a personalized monster. From there, they can choose between three different therapy adventures to “defeat their demons,” depending on how they prefer to cope with their own anxiety. Users are directed through a rousing dialogue with their “anxiety demon” and are rewarded along the way with pleasant visuals, sounds, and animations upon completing both tactile and self-reflective activities.

Activities in the app have been conceptualized from participatory research prompts, and are backed by approaches such as Cognitive Behavioral Therapy, Narrative Therapy, humor and mindfulness practice. The app continues to be developed in consultation with public input, beta testers, and mental health professionals. The app blends information design, interaction design, motion design, game design, user research and cognitive science—accessible through a device that nearly every millennial uses every day. By doing so, Worry Quest will help youth contextualize negative thoughts in an empowering way that affirms psychological agency and encourages positive self-care.

This research was presented at the Design Incubation Colloquium 2.5: Fashion Institute of Technology (FIT) on Saturday, March 12, 2016.